foundation for the end of life care

Providing help at the end of life

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The Foundation for End of Life Care will support end of life services, including hospice, bereavement care, and community education. Through education and inspiration we can all learn what is important to know now, put it in place, and enjoy the rest of our lives.

To learn more, or to make a tax-deductible contribution or bequest, contact us.

Free showing of the film "Being Mortal"
8/15/2016 • 4:08:54 PM
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Free showing of the film
The Foundation for End of Life Care, the Juneau Medical Society, and Hospice and Homecare of Juneau will be offering a free screening and discussion of the PBS program Being Mortal at the Gold Town Nickelodeon on September 13 and 14 and then again on September 17 and 18. The evening shows will start at 7:00 pm and the matinee shows will start at 2:00 pm.

If you attend, you will be part of a conversation that asks, Have you and your family had the tough conversations and planned ahead? Being Mortal delves into the hopes of patients and families facing terminal illness. The film investigates the practice of caring for the dying and explores the relationships between patients and their doctors.

It follows a surgeon, Dr. Atul Gawande, as he shares stories from the people and families he encounters. When Dr. Gawandes own father got cancer, his search for answers about how to best care for the dying became a personal quest.

After the screening, you can participate in a guided conversation on how to take concrete steps to identify and communicate wishes about end-of-life goals and preferences.

Watch a short trailer here https://www.youtube.com/watch?v=VRkr09ZMI3w
See this moving documentary, join the conversation, and explore what matters to you. All are welcome. We hope to see you there!

Return from Grief
4/25/2016 • 3:16:11 PM
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Return from Grief image



On April 28, 2016, 5:30pm to 7:30pm, the Foundation for End of Life Care and AARP will be hosting a presentation on the topic of Return from Grief

Where: Centennial Hall, Juneau, Alaska in the Hickel Room.

There is no cost, and this event is open to the public

Although grief with loss is often unavoidable, and indeed it can be crippling, grief is something that it is possible to pass though and return from. This event is intended to give participants an opportunity to think about grief and to receive advice from four Juneau experts, each with a different perspective on grief. Ginny Palmer channeled her personal experience with death and grief into the production of a book, When you are not here, which serves as a guide for families as they plan for, and respond to, death of a member. Jamie McLean is a psychotherapist in private practice who has formerly worked Hospice and Homecare of Juneau. Joni Pico is a social worker at Hospice and Homecare of Juneau. Dan Wiese is a pastor and chaplain for Hospice and homecare of Juneau. The discussion will be moderated by Dr. Bob Urata, the medical director of Hospice and Homecare of Juneau.

What you should get by going: At the end of the presentation, those who attend should have a better understanding of how to approach a friend in grief, a better idea of what is helpful and what is not helpful to say to someone in grief, and a better idea of how to manage your own grief. Those attending should also have a better idea of what is normal in grief, and a better idea of when a grieving person should ask for professional help.

Palliative Care Presentation
5/28/2015 • 7:52:03 PM
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Palliative Care Presentation image
You are invited to watch the Alaska statewide premiere of "Everything You Wanted to Know about Palliative Care, But Were Afraid to Ask!", Monday, June 8th at 9pm on 360 North Television http://www.360north.org/

The show features a lively presentation by Alaska palliative care doctor Linda Smith M.D., and palliative care social work and counselor Diana Seropian LCSW, and was taped in Juneau by the Foundation for End of Life Care.

If you're watching over GCI Channel cable it is different community by community. It is channel 15 in Anchorage and channel 18 in Juneau. If you need to know other communities, you can determine what channel 360 North is on by consulting http://www.gci.com/tv/guide and putting the zip code in the listing for the community youre interested in.

Please spread the word to fellow Alaskan healthcare professionals, caregivers, patients and anyone who wants to learn more about this issue.

More information on our Facebook page!
https://www.facebook.com/pages/Foundation-for-End-of-Life-Care/671684039627814

Palliative Care Presentation
5/28/2015 • 7:51:01 PM
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Palliative Care Presentation image





The Foundation for End of Life Care sponsored a presentation on improving the quality of life for the seriously ill patient on May 1, 2015 in @360 (The KTOO TV studios) from 5:30 to 6:30. The presentation was put on by palliative care specialist Linda Smith, M.D. and medical social worker Diana Seropian. Dr. Smith is board certified in palliative and hospice care. Ms. Seropian and Dr. Smith both work in palliative care at Providence Hospital in Anchorage.

The Foundation is now on facebook
4/2/2015 • 7:45:26 PM
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Please look us up on Facebook. You can find us here: https://www.facebook.com/pages/Foundation-for-End-of-Life-Care/671684039627814

Advanced Planning Event
10/28/2014 • 3:15:45 PM
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AARP Juneau Community Council and the Foundation for End of Life Care are offering a free presentation on advanced planning Thursday, October 30, 2013 from 5:30 8:00 pm at Centennial Hall in Juneau. Advanced Planning covers such issues as finance, health care options and advanced directives or living wills. The forum will include three presentations; legal aspects of advanced directives--the best gift you can give your family-- by attorneys Vance Sanders and Chris Walker. Former director of Social Services at Wildflower Court, Julie DeLong, will present options when planning for care needs, outlining what resources are currently available in our community. And Nancy Davis, nurse and former program director of Hospice and Homecare of Juneau, will be giving an update on hospice care. The presentations will be followed by a panel discussion, where panelists will answer your questions. The discussion will be moderated by Board President Hal Geiger.

We work hard to provide the community with activities and events that not only add to the quality of life, but also make Juneau a better place in which to live, said Liz Lucas, chair of the AARP Juneau Community Council. Indeed, the best gift I can give my family for their peace of mind is the preparation of advanced planning.

The Foundation for End of Life Care is once again partnering with AARP to provide continuing education in end of life issues, said Board chair Hal Geiger. Last year we had a full capacity audience and we will be providing more space for this years free event.

Before and after the forum the public is invited to learn more about related community resources from partner organizations including the Alaskas Commission on Aging, Juneau Pioneer Home, Southeast Alaska Independent Living (SAIL), Widowed Persons Group, Foundation for End of Life Care, AARP and Wildflower Court.

For more information contact: Liz Lucas, AARP Juneau (907) 789-9655 or lizlucas@hotmail.com or Hal Geiger, Foundation for End of Life Care (907) 723-3234 or geiger@ak.net

Advance Healthcare Directives
6/26/2014 • 5:52:42 PM
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April 16 is National Healthcare Decisions Day. Most of us do not celebrate that day, and even more probably do not know such a day even exits.

However, National Health Care Decisions Day is a good reason to be reminded of the importance of filing out an Advance Healthcare Directive. We should also make sure that when we fill out an Advanced Healthcare Directive, we give a copy to those who need it, and especially to those that we want to make decisions for us, who are named in the Directive.

In Alaska, you can get an Advance Healthcare Directive from many places( e.g., http://alaskalawhelp.org/files/415A60AC-CED2-0813-E7A4-681204E82C22/attachments/5E344146-E1F7-1AFA-4C3C-33C14A33CF65/alaska-advance-health-care-directive-%28january-2014%29.pdf), but there is an easy to use form available through Alaska Legal Services that complies with Alaska Law, or from the Alaska Department of Health and Social Services web site. Alaskas Advance Health Care Directive form includes a healthcare power of attorney, which documents the person you select to make your healthcare decisions if you can't speak for yourself. This form also documents what kinds of medical treatments you want to receive near the end of life (for example, artificial hydration or nutrition).

It is easy for you to find information on the topic of what it means to have a health care agent, as defined in your Advance Healthcare Directive. And, much of this information flows from the Five Wishes (www.agingwithdignity.org/forms/5wishes.pdf) that everyone should consider and think about when filling out an Advance Healthcare Directive.

If you already have an Advance Healthcare Directive, you should review it every year to make sure it is current, and that it accurately reflects your wishes for health care at the end of your life. Also, if you have an Advance Healthcare Directive, you should make sure that anyone named in your Directive has a copy of it. Fore example, you should give one to your partner or spouse, close friend, and family physician. You may want to give a copy to a trusted colleague at your workplace. Some advise keeping a copy on your refrigerator door in a clearly marked envelope so an EMT can find it in an emergency.

You might consider keeping a copy of your Advance Healthcare Directive in your cars glove compartment, or keep a note in your purse, briefcase, or wallet letting anyone who needs it to know that you have an advance directive and its location. The American Bar Association has an app (My Health Care Wishes Smartphone app, http://www.americanbar.org/groups/law_aging/MyHealthCareWishesApp.html), which gives individuals the ability to store and share important health care wishes, and access to a PDF version of your advance directive.

You could enroll in an independent advance directives registry, such as the U.S. Living Will Registry. These registries make Advance Healthcare Directives available nationally and even internationally. U.S. Living Will Registry charges a $59 fee as of 2014, for a five-year membership.

So be sure to fill out and make available an Advance Healthcare Directive. You will be glad you did and your loved ones will be ever grateful.

Advanced Directives Presentation
10/8/2013 • 4:11:57 PM
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Advanced Directives presentation offered in Juneau October 15, 2013

Event is free and open to the public
JUNEAU, AK --

The AARP Juneau Community Council and the Foundation for End of Life Care are offering a free presentation on advanced directives on October 15, 2013 from 5:15 8:00 pm at Centennial Hall in Juneau.

Advanced directives are written instructions that specify medical treatment and actions that should be taken in the event a person can no longer make decisions for himself or herself due to illness or incapacity. Advanced directives are sometimes known as living wills or sometimes by other names.

The event will include three presentations, including ones on the legal aspects of advanced directives by attorneys Vance Sanders and Beth Chapman. Nancy Davis, the former Program Director of Hospice and Homecare of Juneau, will be giving a presentation on how hospice care fits in. The presentations will be followed by a panel discussion, which will include the three speakers as well as community leader Dr. Bob Urata, the Medical Director of hospice in Juneau.

Storyteller Tom Cosgrove on death in his family
3/6/2013 • 6:17:42 PM
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On February 24, 2013, the Foundation for End of Life Care co-sponsored a performance by Juneau-based storyteller Tom Cosgrove at Northern at Light United Church, 11th and B Street in downtown Juneau. Through these stories Tom explored death, grief, caregiving, drawing on his personal experience with his own family.

DVD available and Showing on Televieion
9/11/2012 • 4:58:27 PM
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September 27, 2012 on 360 North scheduled showing:

8 PM "Consider the Conversation: A Documentary on a Taboo Subject"

9 PM "Death in our Community: From Grief to Hope" with Dr. Lani Leary.

DVD available: "Death in our Community: From Grief to Hope" Cost $15.00. Contact Foundation for End of Life Care.

New Publication: Helping those you love
8/18/2012 • 3:26:51 PM
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New Publication: Helping those you love image
After the death of her husband of 22 years, Virginia Palmer, decided to write a manual on preparing for the unexpected. With the help of doctors, lawyers, financial advisors and countless individuals who shared their stories and anecdotesthis book is an easy-to-read manual on what to expect and how to be better prepared. Besides, none of us will live forever, so we may as well make it easier on the people we love.

The 40-page book, titled When Youre Not Herea guide for helping those you love, provides guidance with estate planning, what to do when there is a death in the family, how to cope with grief, and more.

Each book comes with two journals for recording important information that will be urgently needed in the event a death or serious accident. Whether you give it to a young couple as a wedding gift or provide to a family with a terminally-ill memberit may be one of the most important gifts you give.

Book and workbook is available in the Heartside online store.

Death in Our Community: From Grief to Hope
8/18/2012 • 1:46:16 PM
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In 2012, The Foundation for End of Life Care is excited to bring Dr. Lani Leary back to Juneau for a free lecture and workshop on September 21 and 22. The experience of an unexpected death or the experience of caring for a loved on through an incurable illness can be incredibly isolating and emotionally overwhelming. In the age of specialists and medical procedures, people whove reached the end of their lives are trapped in increasing fear of death, and many times trapped by the painful use of technology to keep them alive. We are loosing sight of the dignity of the dying person and see him or her only as a battlefield. People need to be able to find peace and dignity in their final days. Dr. Leary's talk is partially about finding ways to bring peace and comfort to a dying family member or friend and to help that person find meaning and purpose in the time remaining.

Dr. Leary has more the twenty-five years of experience as a psychotherapist working this the chronically ill, dying and bereaved clients. She has just published the book No One Has to Die Alone: Preparing for a Meaningful Death. She has served as the director of mental health services at the Whitman Walker Aids Clinic, a professor of death studies at George Mason University and as a researcher at the National Cancer Institute of NIH. She is the author of Healing Hands and international bestselling audiotape on therapeutic touch and pain management. She recently appeared on TED TALKS, a series of on-line lectures.

Understanding Grief in Children and Teens
8/18/2012 • 1:08:22 PM
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Understanding Grief in Children and Teens image
In 2010 the Foundation invited Prof. Ken Doka, a clinical psychologist and noted expert on grief, to give a lecture and workshop in Juneau. His talk was given on October 1 at the Juneau Arts and Culture Center, with a workshop held the following day at Bartlett Hospital. Prof. Doka has specific expertise in grief in children and adolescents, and his visit was motivated by the death of several children and adolescents in Juneau and elsewhere in Southeast Alaska.

Prof. Doka is on the faculty of the Graduate Gerontology Program at The College of New Rochelle, New Rochelle, New York. He is the author of many books and articles on the topic of death, grief, and spirituality. He has been a guest on CNN and on the television show Nightline. The Foundation for End of Life Care joined in partnership with the Douglas-Dornan Foundation, the Juneau Medical Society, the Youth Action Committee (YAC), and the Westmark Baranof Hotel as co-sponsors of event.

Ten Things I Wish I Knew Before She Died
8/18/2012 • 12:41:11 PM
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Ten Things I Wish I Knew Before She Died image
In 2008, the Foundation for End of Life Care and the Juneau Medical Society invited clinical psychologist Dr. Lani Leary to speak on the topic of Ten Things I Wish I Knew Before She Died. Her 2008 talk was given on April 25 at Centennial Hall, in Juneau (followed by a workshop given the following day). Much of her message had to do with how to empower yourselves and others to make a positive difference about life and death.

Dr. Leary is a specialist in end-of-life care and bereavement with many years of experience in private practice. This was a heart warming and entertaining presentation full of practical advice about preparing for the end of our lives. Dr. Leary has served as the director of mental health services at the Whitman Walker AIDS clinic, as a professor of death studies at George Mason University, and as a researcher at the National Cancer Institute of NIH.

From Cruzan to Schiavo: What have we learned?
2/27/2009 • 7:03:50 PM
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In 2006, the Foundation brought attorney and author William Colby to Southeast Alaska for two free public lectures. Mr. Colby spoke in Ketchikan at the SE Alaska Discovery Center on Thursday October 19, 2006 and in Juneau on Friday October 20, 2006 at the UAS Egan Library. The title of his talk was, "From Cruzan to Schiavo: What have we learned?" Mr. Colby is the author of two books related to planning for the end of life: "Unplugged; Reclaiming our right to die in America"(2006) and "Long Goodbye: the deaths of Nancy Cruzan" (2002). Additionally, he is a Senior Fellow with the National Hospice and Palliative Organization and a national spokesperson for their "It's About How You Live" national campaign.

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